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Author Topic: Death - The Greatest Teacher  (Read 2712 times)
Butterfly
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« on: October 17, 2005, 12:44:34 PM »

SpiritMan put this thread on the CN site.  I thought it was a wonderful place to go to talk about our experiences with the death of a loved one.
« Last Edit: October 17, 2005, 06:00:37 PM by pesoto74 » Logged

Inside every older lady is a younger lady --wondering what the hell happened.    Cora Harvey Armstrong
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« Reply #1 on: October 17, 2005, 03:59:39 PM »

I am appalled by the insensitivity with which some approach the loss of a child.  Grieving is a personal thing and no two people grieve the same.  I can confirm that the loss of a child is devastating.  It leaves a void in your life that can not be filled, so different people take different approachs to handling their grief.  There are pictures, but the pictures can not return a warm hug.  There are letters, but the letters can not replace the sound of your childs voice. 
 
It's been five years since Anne left this earth for heaven's gates.  Parents should never have to bury their children.  There were times when I sought a quiet corner where I could go to stitch up the gaping hole her death left in our hearts.  But sorrow is fleeting and joy seeps in through the loving memories we have of her. 

We remember her when a cool breeze rustles through the trees or the sun dances across the window leaving a rainbow of color or we see graceful birds catching the updraft or feel the soft spring rains that make the earth new again.  We see her in the millions of stars that dot the night sky and when the moon shines bright, there she is.  Sometimes remembering brings tears because it's sad when the ones you love the most get used up and are no more.  But then a happy memory like, sitting on the side of the pool eating tomato and mayonaise sandwiches and dangling our feet in the cool water surfaces, and the joy returns.
 
How could I have known the last time she called the "I love you mom" would have to last a lifetime?

Those who judge a grieving mothers motives for the things she does should first walk a mile in her shoes.



 
 
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Pat Testa
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« Reply #2 on: October 19, 2005, 05:00:59 PM »

How well I remember the day I was told that my daughter was dying......and there was nothing that anyone could do. I remember the endless crying jags and I remember asking myself "why"Huh What did I do to deserve losing my first born child...? I remember Christians telling me it was Gods will...and I remember screaming at the sky "I HATE YOU GOD", and I remember hating the Tobacco Companies for making the deadly cigarettes that caused her addiction...and I am a person who never hated...but somehow this seemed justified. I was helpless and I cried and nothing seemed funny any more.

I think it was her strength and her courage and her ability to make everyone...including her oncologist...feel okay about her situation. She actually made him smile when he would come in the room. The nurses loved her and I remember one time when they had to do an emergency surgery and one of the nurses had never assisted in the procedure before....but she asked to do it, even though her shift was over...she later told me it was OFC (Only For Cyndi)
I thought about it a lot after her death and decided that hate was a bad thing and she wouldn't want me to go on living with it. I still miss her and I can think of her and smile...and I know she is smiling back... wink
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nancyo
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« Reply #3 on: November 14, 2005, 06:59:55 PM »

Those of us who have never lost a child can't begin to know what either of you felt.  I think about how worried I have been over the years at times my kids or granddaughter was ill or just out later than they were supposed to be and all the terrible "what ifs" that ran through my mind.  And when my granddaughter had an auto accident and had to be air lifted to the hospital.  Such a helpless, hopeless feeling.  I would only pray that I could continue to handle my life as gracefully as both of you have been able to do.  God bless you for continuing to offer your wisdom and insight to us.  And I know for certain your children are waiting for you to join them in the most special place we could ever imagine.
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Butterfly
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« Reply #4 on: November 15, 2005, 12:32:36 PM »

Our dad had been mom's sole caretaker for years.  He had taken on all the household tasks, the shopping, laundry, the cooking, in the end even bathing mom on the days that the church ladies weren't able to be there.   He did all this and hardly missed a day at his beloved Harrison Park for golf.  We all hoped, after mom passed away in April 2001, that dad would be able to relax and enjoy life, to play more golf with his buddies.  

It happened that 2001 was the year Lauhoff was on strike and my husband spent almost the entire summer there walking the tracks and helping to keep the plant going.  I would go whenever I could to spend time with him and would always stop by to see dad.  He seemed fine to me, worn out after his morning golf and then grocery shopping, but really not complaining.  He had a cough that wouldn't go away and I talked him into going to the walk in clinic.  They told him he had pneumonia and gave him an antibiotic for it.  He seemed better, but the cough lingered.  Often I would spend time just watching the old shows on TV with him.  He seemed content just having someone there.  There were always things that needed to be done and he'd say he was going to get around to it, but I began to realize that he just couldn't do things the way he used to.  I had gone back in July for a week and had offered to paint the front porch for him.  It was peeling and really looked awful.  I spent one day washing the porch then scraping all the loose paint off and filling gaps with caulk.  Dad was really getting a kick out of it because every kid in the neighborhood was "helping" me.  He loved watching the kids.  I told him that the next year he should have the porch done right, some boards replaced and the whole thing sanded down and repainted.  He just looked at me and said  "What makes you think I'll be around next year?".  I was taken aback, thinking, of course you'll be around.  These were words I would remember just one short month later.

To reward me for painting the porch, I insisted he take me out for lunch.  He seemed delighted.  We went to Applebees, but he didn't seem to have much of an appetite.  He used to cook for mom everyday, meat, potatoes, vegetable and a dessert, but one day I stopped by and caught him eating beans and franks out of a can.  He told me about the time he had eaten in a restaurant and couldn't get up from the booth.  He had to have the waitress help pull him up ........... he was embarrassed, so he didn't often eat out.

When Marlene stayed with him in August, he was still coughing, in fact, she said he coughed all night.  I called him and urged him to go back to the clinic.  It took him two weeks to get an appointment.  By then it was the end of August.  This time, he had a different doctor who told him he did not have pneumonia and to make an appointment with his primary physician.  He called Dr Sodi, because he was moms doctor.  Dr. Sodi sent him straight to the hospital for a Cat Scan, he drove himself there.  He had played nine holes of golf that morning.  They admitted him to the hospital and my youngest sister called to tell me what was going on.  We got ahold of our sister-in-law, who tracked him down.  My husband and I were going to be there the next day anyway, so I dropped my husband off at the mill and headed for the hospital.

I knew my dad hated hospitals, in fact, I couldn't remember a time when he was sick.  There he was sitting in the hospital bed, goofing off with the oxygen pipe.   My brother, his wife and I stayed with him all day waiting for the doctor to come in with the results of the scan.  At 4:30, I had to go pick my husband up.  When we got back to the hospital, the doctor was in the room.  He waited until we were gathered at the bed, then told us that they had found two spots on his lungs, that it was too late for chemo and surgery was out of the question.  I collapsed, any thought of being strong dissolved along with my tears.  Dad was the strong one, he told us not to cry, that he was 85 and had had a good life.  I marveled at his strength.  They had to do a biopsy to confirm it was cancer, which would be done early the next morning.

When I arrived, early the next morning, they were taking him down to do the biopsy.  The nurses remarked that his legs were very tan and he bragged that he had played 9 holes of golf the day before.  He looked the picture of health.  When the lung specialist came out after the biopsy, he sat beside me and took my hand.  He told me "it" had spread everywhere.  It was in his lungs, his kidneys and if he had been having trouble eating, it was very likely in his stomach.  I told him that after our mothers long illness, he had expressed a wish to just drop dead on the golf course.  He said that could very well happen, that he could go at any time.  They took him back to the room and I called my siblings while he was sleeping.  His best friend arrived and broke down when I told him the news.  We would see a lot of him the coming month.  They wanted to give dad radiation treatments, even though it wouldn't have cured him and any "extra" time he may have had by having the radiation, he would have spent in the hospital.  When told he could just go home, his reply was............ "We'll, by god, that's what I'm going to do !!"  He went home and my husband and I returned to St Louis.  I told myself I couldn't handle it.  I had been with mom when she died and couldn't do it again.  So, Bob and Pat arrived to stay with him, but, for me, everything changed after 9/11.

I was never so grateful to my brother Bob for being there and always knowing just what to do, having dealt with death many times.  After 9/11, I found myself deep in thought, wondering why and at the same time dealing with the fact that dad was dying.  Often, while driving, I would have to pull over because I would start to cry and couldn't see to drive.  I knew then, that I had to go back.  Bob and Pat had been there with dad for two weeks.  They would sit at the kitchen table every morning and reminisce, sometimes dad forgetting that he was sick.  Word had spread, and friends and family began to show up every day to say their last farewells.  Dad enjoyed this precession, never tiring of the visits.  

The first week he was back home, they took him to his beloved Harrison Park to say goodbye.  His buddies offered to drive him around on the golf cart but he declined, happy to just drink in the beauty of the course.  By the time I arrived his deterioration was visible daily.  He went from walking on his own, to using mom's walker, to having to use the wheelchair and sleeping in the hospital bed that she had been confined to.  Bob knew just when to ask for hospice.  They were wonderful.  He was on oxygen the last few days and sometimes would just sit in his wheelchair slumped over with a pillow on his stomach.  His friend came by almost daily. Dad would always perk right up when his friend entered the room. He came out of dads room visibly shaken one day, saying that dad had told him he loved him.  I laughed and said how hard it was for you "old guys" to say that .  

Every evening, dad would make his way into the bathroom to get ready for bed.  It was heart wrenching to listen to him coughing and gaging, trying to clear his lungs.  We would sit on the couch huddled together, listening, crying softly so he wouldn't hear us.  When we knew he was back in the bedroom, sitting on the side of the bed, trying to get his breath, we would go in, one by one and say goodnight, not knowing if it would be the last time.  I would sit next to him and touch the gray hairs between his shoulder blades and tell him I loved him.  He always took my hand in his and I marveled at how strong they still felt.  He could barely breathe, yet his hands were the same strong hands that would pick me up when I was little and swing me around.  He told me how grateful he was that we were there for him so that he could be at home and he would tell me that he was not afraid to die.

He spent his last day in bed, no longer taking any fluids.  Hospice came and hooked him up to a morphine monitor.  His friend came by twice that day.  My daughter in law came by to see him and was in the room before I could warn her.  She came out shaken and in tears.  We sat by his bed all day taking turns holding his hand.  My brother Steve went to the drug store and bought a portable CD player and we played soothing music, his toes danced to the rhythm.  We hoped he was having good dreams.  He passed away that night with 4 of his 7 children, and his beloved daughter in law at his bedside.
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Inside every older lady is a younger lady --wondering what the hell happened.    Cora Harvey Armstrong
Curt
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« Reply #5 on: November 15, 2005, 04:38:06 PM »

   Having experienced many deaths of close family over time I can say that there have been many lessons but none more important for me than not holding on too tight to what we assume is life. I believe that knowing absolutely the inevitability of ceasing to exist is the end of fear and the beginning of truly living with no illusions foisted on us. It is easy to wander aimlessly though the world and assume so many things that we have no direct experience of - while in truth we know so little.
   The brushes with death give opportunity to strip away the illusions and make decisions based on the important things such as the moments which will never come again. I have always been a bit of a loner in this world and as such I find the shared moments with family and friends stand out in my memory and the rest of time is meaningless. The assumption is that we have time - the reality (? ) is that time has us.
   I wish I had known of what was going on with your father - It would have been very important to say goodbye - I never got to say goodbye to my Dad.  I have only had this priveledge with a few people in my life and these will live with me for thier power and meaning.   
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Pat Testa
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« Reply #6 on: November 15, 2005, 06:54:57 PM »

Butterfly,
I'm glad you told the story and how all of Dad's children participated in the last month of his life. Bob and I lived with Dad and took care of him and you and Mike were there a lot of the time. Marlene called every day and Steve and Nancy came by every day to check on him. Chris came by when she could and Barbara called or had Marlene relay the information to her. I was so proud of all of my siblings and the part they played in making our Dad know how much we loved him. It wasn't all sad...because where else did we get our sense of humor, if not from our parents. I'll tell some of the amusing stories at another time. But I think staying with Dad and helping him through this challenge was the MOST rewarding thing I have ever done in my life. I am so lucky to have been born into this family.... smiley
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« Reply #7 on: November 15, 2005, 07:27:04 PM »

I wanted to post something this morning but after reading Butterfly's account of dad's last days I was in no condition to do so. 

I remember those nightly calls.  I tried to call and tell dad good night knowing that at some point it would be the last time I would ever talk to him.  It was important to me to let him know he was on my mind and to tell him I loved him.  I rarely did it without crying and he would always tell me "don't cry."  I couldn't help it.  Even now as I type this the tears flow freely because the pain of losing him is still fresh.

It was so different with mom.  She suffered for so long that letting her go was easier because I knew her suffering would be over.  Dad, on the other hand was always so healthy and energetic and to see him decline so fast was a shock and hard to accept.

Like Pat, I feel lucky to have been born into this family.  Having been in the nursing home business for years and seen first hand how some children treat their parents, I am proud of the love and respect we were able to show both mom and dad, but then why not.....it came from them and I will be forever grateful for their examples.
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Pat Testa
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« Reply #8 on: December 09, 2005, 09:45:49 AM »

I am in the midst of my holiday baking and naturally, thoughts of my Mother are on my mind...for it was she who gave us the foundation for all the creative baking that we do on holidays. When she died...or actually...when she no longer was able to do all the cookies and candy and decorating...I vowed to carry on her tradition of giving home made goodies to friends and family and those less fortunate.

I also have a reminder of my Father in a vase on my kitchen counter (not that I need a reminder). When Sunset Memorial came to collect his body in the wee hours of the morning of the day he died...instead of just taking him away....they left a beautiful rose on the pillow of his bed. It was so much more comforting than going in his room and seeing his empty bed. The rose is the most realistic silk rose I had ever seen and it still reminds me of a beautiful spirit that still lives on in his children. It was appropriate also because the beautiful music that we played all night long for him while he passed from this life to the next was a CD called "Silk Road" by Kitaro.
I have learned to look at Death quite differently since I have had to deal with it so often in the past few years...and will continue to deal with it in the near future.   
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Butterfly
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« Reply #9 on: December 09, 2005, 10:50:43 AM »

I was thinking of mom this morning, more so than most days, for the very same reason.  It's amazing, when you think about it, all the things she did for others while raising 7 kids.  The holidays were an exciting time for all of us and those traditions were passed on down through the family over the years.

I remember the rose made me cry and made me feel better all at the same time.  Funny how something so simple can make such a difference.
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« Reply #10 on: December 09, 2005, 12:49:57 PM »

The Rose is making me cry right now....... cry

Yesterday while I was making candy I felt mom's presence in my kitchen, and I could hear her singing along with the Christmas music I was playing..........I know she will be there again this afternoon when I take up where I left off......... wink
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Nan
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« Reply #11 on: December 10, 2005, 05:47:19 PM »

Sunset still leaves the rose, even when they come to the hospital. It's amazing how that such a simple gesture can mean so much to someone. Often when they come to the hospital, the family has already left and probably never know. Not sure what happens to the rose if no one is there to take it.
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Butterfly
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« Reply #12 on: December 10, 2005, 06:01:05 PM »

I think that is a perfect example of how the little, seemingly insignificant things we do every day can mean a lot to someone else.  Whether it's a smile, a kind word, a hug or a wink, you may leave an imprint on someone's heart by your action.
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Inside every older lady is a younger lady --wondering what the hell happened.    Cora Harvey Armstrong
Pat Testa
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« Reply #13 on: December 11, 2005, 11:45:50 AM »

I think that is a perfect example of how the little, seemingly insignificant things we do every day can mean a lot to someone else.  Whether it's a smile, a kind word, a hug or a wink, you may leave an imprint on someone's heart by your action.

I'm sorry...this is supposed to be a serious thread, but what you said about about a smile leaving an imprint on someone's heart made me think about a busboy at a favorite restaurant of ours. Every time we would go in there, it seemed like every time I looked up....there he was .... smiling at me...so, being me...I smiled back.
Then I started noticing that when we would leave...he would find a reason to be at the door to wave goodbye. He seemed pretty harmless and it's always nice to be noticed...especially when you reach "The invisible age"...but, after a while it made me feel self conscious and whenever someone would want to go there...I'd suggest somewhere else. Last time we went there, I didn't see him...but, I never meant to leave such a big imprint..... shocked
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« Reply #14 on: December 12, 2005, 09:21:59 PM »

A good friend lost her daughter tonight.  Rebecca was 34 years old and mentally retarded.  She has been in a w/c all her life and was never able to speak.  Every year she had a bout with pneumonia.  This year Suzanne and Bill decided not to take any extreme measures.  They were ready to let go and end her suffering.
With the help of hospice they were able to take her home to die.

I know even though they made the decision, it will be hard on them.  Suzanne has been the sole care giver all these years and never left Rebecca's side when she was in the hospital.

Please keep this family in your prayers..... cry
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